There are many fine websites open to anyone interested in PD and related diseases. Rather than try to list all of the good ones we will supply you with a small collection that we believe will cover most questions and also lead you to other sites that might have answers to the questions you cannot answer with the addresses given.
Young Parkinson’s – a site for those who are younger than the usual 50 and above when diagnosed. Of course, you may access this site if you are any age.
http://www.youngparkinsons.org/pages/index/siteindex.htm
National Parkinson’s Foundation - The Mission of the National Parkinson Foundation (NPF) is:
* To find the cause of and the cure for Parkinson disease through research.
* To improve the quality of life for persons with Parkinson and their caregivers.
* To educate persons with Parkinson, their caregivers, healthcare professionals, and the general public about Parkinson disease and its treatment.
http://www.parkinson.org/NETCOMMUNITY/Page.aspx?&pid=201&srcid=201
Michael J. Fox Foundation - The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.
http://www.michaeljfox.org/
PAN -
The Parkinson's Action Network (PAN) is the unified voice of the Parkinson’s disease community—advocating for more than one million Americans and their families.
Today PAN serves as the voice of Parkinson’s on numerous public policy issues affecting the Parkinson’s community. In addition to continuing our work on NIH funding and research, the Parkinson’s community is now a powerful voice on many crucial issues including Parkinson’s-specific programs at the Departments of Defense and Veteran’s Affairs, FDA drug approval issues, HHS programs (Medicare and Social Security), and our continuing struggle to achieve research freedom for stem cell research.
We at PAN have established a strong national grassroots advocacy program, which drives our success on PD-related issues. PAN continues to be the leading voice for patient advocacy in Washington, D.C., working to bring much-needed awareness to the public and lawmakers about the affects of Parkinson’s disease. We hope that with greater understanding, we will make great strides in finding better treatments and a cure for Parkinson’s disease.
http://parkinsonsaction.org/
American Parkinson’s Disease Association – Connecticut Chapter
The Connecticut Chapter of the APDA is a grass roots organization which provides:
• Assistance with outreach, awareness and educational programs
• Organization of fund-raisers, like annual Walk-a-thons, which support services in the state and research across the country
• Acceptance of donations from individuals and groups made in memory or honor of Parkinson’s patients
• Coordination of volunteer efforts within the Parkinson community
• The Chapter is affiliated with the Information and Referral Center located at the Hospital of Saint Raphael in New Haven, CT. The Center offers a variety of programs and services to help you and your loved ones affected by Parknson's live life to its fullest potential.
The Center's free services include:
• A telephone helpline (203-789-3936 and toll-free 1-877-282-7328) for information and assistance
• Referrals to important community resources
• Counseling and advocacy
• Newsletters, handbooks, and other materials
• Educational lectures and community programs
• A library of books, videos, and audio tapes
http://www.ctapda.org/
Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy. We are working for the nearly one million people in the US living with Parkinson's by funding promising scientific research and supporting people with Parkinson's, their families and caregivers through educational programs and support services.
http://www.pdf.org/
http://parkinsonsaction.org/
http://www.wemove.org/
http://www.pdtrials.org/front/
http://www.ctapda.org/