The group has projects of different lengths and emphases that teams of members are involved in. These projects come about by personal initiative or, as is often the case with larger projects, as a suggestion from the Board of Trustees. Some past and current larger projects are:
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Forum on Clinical Trials - held on 3 March 2007
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Placing an information resource binder in significant medical professional’s offices as a source book for newly diagnosed people, and others who have an interest in PD. An ongoing project.
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Meeting with small (10-40) groups of health care professionals to help them understand the special problems of PWP and how they can help solve some of them when such a person comes under their care. Ongoing since 2002: we have met with several VNA groups, hospital staff and doctors, as well as medical students.
Other Current Projects:
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compilation of a PD library for use by members;
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holding workshops at meetings with themes such as fitness and PD, dietary concerns, accessing information;
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organizing information sessions for recently diagnosed people to give them support and resources that will help them through the first months and years with PD;
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collaborating with research institutions and drug companies in their search for participants in clinical trials.
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making presentations to the medical community (doctors, nurses, and other healthcare professionals) about how they can better help for the PWP who come under their care. We visit hospitals, the VNA, recovery facilities, etc ...